Patient version of guidelines: current practice and research gaps_Chinese Journal of Evidence-Based Medicine

Authors：

YAN Lijiao ¹ , LIANG Shibing ¹ , YU Zeyu ¹ , CHEN Wei ¹ , Sarah Scott ² ,  LIU Jianping ¹

1. Center for Evidence-based Medicine, Beijing University of Chinese Medicine, Beijing 100029, P. R. China;
2. National Institute for Health and Care Excellence (NICE), Manchester M1 4BT, UK;

Corresponding?author：

LIU Jianping, Email: liujp@bucm.edu.cn

Keywords：

Patient version of guideline; Decision-making; Shared decision-making; Patient engagement

DOI：

10.7507/1672-2531.202208037

Video：

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There is an increase in published studies relevant to the development of patient version of guidelines (PVGs). We reviewed, summarised and analysed the current developments in this field, with the aim of informing domestic scholars of the factors to consider when developing quality PVGs. We proposed three recommendations: (1) the concept of patient guidelines needs to be better defined; (2) a platform for the dissemination of PVGs should be established to support their implementation; and (3) a standardised PVGs development methodology should be developed to ensure the quality of the PVGs.

Citation： YAN Lijiao, LIANG Shibing, YU Zeyu, CHEN Wei, Sarah Scott, LIU Jianping. Patient version of guidelines: current practice and research gaps. Chinese Journal of Evidence-Based Medicine, 2023, 23(2): 221-226. doi: 10.7507/1672-2531.202208037 Copy

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11.	姜雨婷, 田潤溪, 段思柳, 等. 對糖尿病高危足患者指南制訂的思考. 中國護理管理, 2016, 16(12): 1628-1632.
12.	葉超群, 梁東風, 凌夢鈺, 等. 纖維肌痛運動干預患者實踐指南(2021年). 解放軍醫學院學報, 2021, 42(8): 790-797.
13.	王瑞香, 朱思靜, 周麗瓊, 等. 缺血性腦卒中二級預防患者指南的構建. 護理研究, 2021, 35(24): 4351-4357.
14.	謝雅, 楊克虎, 呂青, 等. 強直性脊柱炎/脊柱關節炎患者實踐指南. 中華內科雜志, 2020, 59(7): 511-518.
15.	邱敏麗, 謝雅, 王曉紅, 等. 骨質疏松癥患者實踐指南. 中華內科雜志, 2020, 59(12): 953-959.
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19.	中華醫學會兒科學分會臨床藥理學組, 中華醫學會兒科學分會呼吸學組, 劉恩梅, 等. 中國兒童咳嗽指南(2021患者版). 兒科藥學雜志, 2021, 27(S1): 17-22.
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21.	方霖楷, 黃彩鴻, 謝雅, 等. 類風濕關節炎患者實踐指南. 中華內科雜志, 2020, 59(10): 772-780.
22.	黃葉飛, 楊克虎, 陳澍洪, 等. 高尿酸血癥/痛風患者實踐指南. 中華內科雜志, 2020, 59(7): 519-527.
23.	劉輝, 王華, 劉云蘭, 等. 中國兒童消化道異物管理指南(患者與公眾版, 2022)計劃書. 中國實用兒科雜志, 2022, 37(2): 81-87.
24.	Morse JM, Mitcham C, Hupcey JE, et al. Criteria for concept evaluation. J Adv Nurs, 1996, 24(2): 385-390.
25.	Brignardello-Petersen R, Carrasco-Labra A, Guyatt GH. How to interpret and use a clinical practice guideline or recommendation: users' guides to the medical literature. JAMA, 2021, 326(15): 1516-1523.

1. GIN Guidelines International Network. GIN PUBLIC toolkit. Available at: https://g-i-n.net/wp-content/uploads/2022/01/Toolkit-combined.pdf.
2. Dreesens D, Stiggelbout A, Agoritsas T, et al. A conceptual framework for patient-directed knowledge tools to support patient-centred care: results from an evidence-informed consensus meeting. Patient Educ Couns, 2019, 102(10): 1898-1904.
3. van der Weijden T, Pieterse AH, Koelewijn-van Loon MS, et al. How can clinical practice guidelines be adapted to facilitate shared decision making. A qualitative key-informant study. BMJ Qual Saf, 2013, 22(10): 855-863.
4. Yan LJ, Li SA, Jin XJ, et al. Development of patient versions of in Chinese mainland: a systematic survey of current practices and methods. Patient Educ Couns, 2022, 105(12): 3410-3421.
5. 李艷, 陳耀龍, 陳靜, 等. 心肌梗死二級預防非藥物措施患者指南的研制思路. 中國循證醫學雜志, 2016, 16(5): 617-620.
6. 肖淑君, 高玉婷, 王小琴, 等. 患者指南及其制訂方法介紹. 藥品評價, 2017, 14(6): 44-48.
7. 邢年路, 周英鳳, 方園, 等. 基于證據的患者指南制訂和發展的研究進展. 解放軍護理雜志, 2021, 38(7): 67-70.
8. Dreesens D, Kremer L, van der Weijden T. The Dutch chaos case: a scoping review of knowledge and decision support tools available to clinicians in the Netherlands. Health Policy, 2019, 123(12): 1288-1297.
9. Gandjour A, Westenh?fer J, Wirth A, et al. Development process of an evidence-based guideline for the treatment of obesity. Int J Qual Health Care, 2001, 13(4): 325-332.
10. 陳耀龍, 荀楊芹, 李博, 等. 如何制訂患者指南. 協和醫學雜志, 2020, 11(4): 453-458.
11. 姜雨婷, 田潤溪, 段思柳, 等. 對糖尿病高危足患者指南制訂的思考. 中國護理管理, 2016, 16(12): 1628-1632.
12. 葉超群, 梁東風, 凌夢鈺, 等. 纖維肌痛運動干預患者實踐指南(2021年). 解放軍醫學院學報, 2021, 42(8): 790-797.
13. 王瑞香, 朱思靜, 周麗瓊, 等. 缺血性腦卒中二級預防患者指南的構建. 護理研究, 2021, 35(24): 4351-4357.
14. 謝雅, 楊克虎, 呂青, 等. 強直性脊柱炎/脊柱關節炎患者實踐指南. 中華內科雜志, 2020, 59(7): 511-518.
15. 邱敏麗, 謝雅, 王曉紅, 等. 骨質疏松癥患者實踐指南. 中華內科雜志, 2020, 59(12): 953-959.
16. Santesso N, Morgano GP, Jack SM, et al. Dissemination of clinical practice guidelines: a content analysis of patient versions. Med Decis Making, 2016, 36(6): 692-702.
17. Loudon K, Santesso N, Callaghan M, et al. Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses. BMC Health Serv Res, 2014, 14: 321.
18. Fearns N, Graham K, Johnston G, et al. Improving the user experience of patient versions of clinical guidelines: user testing of a Scottish Intercollegiate Guideline Network (SIGN) patient version. BMC Health Serv Res, 2016, 16: 37.
19. 中華醫學會兒科學分會臨床藥理學組, 中華醫學會兒科學分會呼吸學組, 劉恩梅, 等. 中國兒童咳嗽指南(2021患者版). 兒科藥學雜志, 2021, 27(S1): 17-22.
20. 楊丹, 郭海玲, 李小花, 等. 基于證據的腦卒中患者肢體功能康復健康科普作品研制. 中華護理教育, 2022, 19(2): 101-106.
21. 方霖楷, 黃彩鴻, 謝雅, 等. 類風濕關節炎患者實踐指南. 中華內科雜志, 2020, 59(10): 772-780.
22. 黃葉飛, 楊克虎, 陳澍洪, 等. 高尿酸血癥/痛風患者實踐指南. 中華內科雜志, 2020, 59(7): 519-527.
23. 劉輝, 王華, 劉云蘭, 等. 中國兒童消化道異物管理指南(患者與公眾版, 2022)計劃書. 中國實用兒科雜志, 2022, 37(2): 81-87.
24. Morse JM, Mitcham C, Hupcey JE, et al. Criteria for concept evaluation. J Adv Nurs, 1996, 24(2): 385-390.
25. Brignardello-Petersen R, Carrasco-Labra A, Guyatt GH. How to interpret and use a clinical practice guideline or recommendation: users' guides to the medical literature. JAMA, 2021, 326(15): 1516-1523.

Chinese Journal of Evidence-Based Medicine

Patient version of guidelines: current practice and research gaps

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